Title IX Intellectual and Developmental Disabilities Waiver Wait List Becomes Political Issue Going Into Next West Virginia Election – Wheeling Intelligencer

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Title IX Intellectual and Developmental Disabilities Waiver Wait List Becomes Political Issue Going Into Next West Virginia Election - Wheeling Intelligencer


Photo by Perry Bennett W.Va. Legislative Services
Jeremiah Samples, deputy secretary of the Department of Health and Human Resources, briefs lawmakers on the research the company is doing on the I/DD waiver program.

CHARLESTON — Advocates for individuals with mental and developmental disabilities are holding state authorities accountable for a promise made almost 5 years in the past to revive funding for a waiver program, and lawmakers and candidates in 2020 try to get in entrance of the problem.

In 2015, former Gov. Earl Ray Tomblin and the Republican-led West Virginia Legislature slashed the Title IX Intellectual and Developmental Disabilities (I/DD) Waiver program, which allowed these particular person to stay with members of the family as a substitute of being positioned in establishments.

Ever since, there was a waitlist for I/DD waivers. As of October there are 1,084 people with 214 individuals added within the final 12 months. According to the WV Developmental Disabilities Council, the following individual to return off the I/DD waiver record could have been there for greater than 4 years, with 121 people leaving the record altogether as a result of wait.

Advocates had been instructed in 2015 that ought to cash turn into obtainable, extra waiver slots can be opened up. But since 2017, there was a surplus within the state Department of Health and Human Resources line merchandise for Medicaid, partially on account of slicing the I/DD waiver program. Money from the Medicaid surplus has as a substitute been used to backfill the final income price range.

As of 2019 there’s now $19.5 million obtainable in Medicaid surplus. Combined with matching federal {dollars}, almost $70 million may very well be obtainable to assist clear up the I/DD waiver wait record.

Families have referred to as their lawmakers and the Governor’s Office, despatched in petitions, lobbied their congressional consultant, and have held rallies yearly, together with Monday night time in entrance of the state Senate Chamber. Between 50 and 75 individuals confirmed as much as let their voices be heard.

Tracy White, a father or mother advocate and a member of the Kanawha County Board of Education, has been main the cost with different advocates and organizations to finish the I/DD waiver waitlist. After years of being a part of the battle, she thinks 2020 is the 12 months issues change for the higher for folks and advocates.”

“My intestine says sure. We’re very hopeful that that is our 12 months,” White mentioned. “We have seen a surplus, a Medicaid surplus, 12 months after 12 months and we’re hopeful that that is our 12 months, however till we all know for positive we’re going to maintain pushing ahead.”

Numerous lawmakers stood behind presenters on the rally. Even Democratic candidates for governor, lawyer common, and secretary of state attended that rally.

“This is somewhat totally different than up to now,” White mentioned. “We’ve, we’ve knocked on lots of doorways and made lots of noise, however this time now we have lots of of us behind us and it’s a bipartisan effort. Both sides are popping out and loudly talking on behalf of clearing this wait record.”

While the I/DD waiver situation has lingered over time, it rapidly gained momentum final week after Gov. Jim Justice launched an announcement Dec. 13 calling for DHHR to start out a proper research to develop choices for ending the waitlist. Justice mentioned he needs the research executed by Jan. 15, 2020, per week after the Jan. eight begin of the 2020 legislative session.

“Some of West Virginia’s most weak males, girls and youngsters have been on the waitlist for greater than 4 years,” Justice mentioned. “We completely should discover a method to eradicate the waitlist in order that these West Virginians can get the assistance and assist they deserve.”

During a gathering Dec. 17 of the Joint Committee on Government and Finance, DHHR deputy secretary Jeremiah Samples answered questions from lawmakers concerning the I/DD waiver situation.

“What we’ll be doing is placing collectively a breakdown of historic expenditure traits within the I/DD waiver program, particularly these traits since 2015 when some pretty vital modifications had been made,” Samples mentioned. “We will even be placing collectively an evaluation of waiver companies in different states with the understanding that every state has nuanced waiver companies that they’ve utilized for.”

White mentioned Justice spoke on the 2017 I/DD waiver rally, however the DHHR research is probably the most motion they’ve seen from the governor on the problem.

“Governor Justice popping out and asking for that research is the furthest that we’ve ever gotten from any governor,” White mentioned. “For him to return out and say ‘what concerning the wait record? Let’s do a research. Let me see these numbers. Let me see if the cash’s there and we will clear these thousand individuals plus and get them the companies that they want’ is big.”

Samples mentioned West Virginia was recognized in 2015 for having one of the profitable waiver applications within the nation, and that the modifications made to this system in 2015 had been meant to deliver this system again on par with different states. According to Samples, the estimated prices per waiver in fiscal 12 months 2015 was roughly $79,000. The value went down in fiscal 12 months 2018 to $69,000 per waiver.

“When you’re speaking a few program that has roughly 4,500 individuals on it, that’s a considerable financial savings,” Samples mentioned. “We had roughly $45 million in financial savings the primary three years after implementing these modifications.”

Justice is up for reelection in 2020, going through three Republican challengers within the May 12 major. Kanawha County Commissioner Ben Salango, one in every of 4 Democratic candidates for governor, stood straight behind the rostrum through the rally. He put out an announcement Dec. 15 calling for an finish to the waitlist.

“Every 12 months underneath Jim Justice’s administration, there was a Medicaid surplus and but not one of the surplus has been used to clear this waitlist. These are West Virginia households who desperately want the assistance, and the Justice administration has continued to do nothing besides supply phrases and false guarantees. It’s long gone time for research; it’s time for motion.”

Numerous lawmakers, each Republican and Democrat, have expressed assist for ending the I/DD waiver record. Del. Dianna Graves, R-Kanawha, instructed rally attendees final week that when the House Republican Caucus met just lately to debate 2020 legislative priorities, ending the waitlist was a type of priorities.

“I can let you know clearing the waitlist made the precedence record,” Graves mentioned. “But we nonetheless want your voices. It doesn’t matter if one aspect of the House thinks that is necessary to behave on it proper approach. We must get (the Senate) and each events to agree.”

State Sen. Glenn Jeffries, D-Putnam, mentioned he hadn’t heard of the I/DD waiver situation when he first took workplace in 2017. Since then, he has straight written Justice urging him to behave and take away the waitlist.

“We know there are kids, adults, and households who’re in determined want with I/DD waiver help,” Jeffries mentioned. “The wait has grown too lengthy for too a few years.”

For White, whereas she appreciates the sudden present of assist for the I/DD waiver situation, she hopes that it’s extra than simply phrases.

“It was a promise that was made again in 2015…and right here we’re in 2019 and it’s but to occur,” White mentioned. “We all are way more on board than now we have been earlier than because the significance of getting these names off the record and getting these households the companies that they deserve has grown.”

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